Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Monday, December 31, 2012

Steps in the right direction!

Another good day in the NICU! There are always ups and downs, though.

** I've only called Owen the name Colton twice. :)
** Owen's feedings have increased again. He is up to (at least) 40 ml every 3 hours!
** They removed his IV!
** O is on a lower flow oxygen that is more mixed with the room air.

"Downs" -although not too far down :)
** He wasn't keeping his temp up, so they are using the baby warmer agains, although he also has on real clothes! (another up!)
** His billi levels rose a bit again today and I think he looks more jaundice. Although it is still in normal range, so no lights!
** Owen is more tired today, and taking the first parts of his feedings well, but then he is just done.

A finger snuggle

Smiles :)

Mr. Owen has been working hard today and has been resting a lot.  We have switched over to bottles because he has been having great luck with it.  And, the sooner we are eating not through the NG tube, the sooner we get to go home!

The docs are pleased with his progress and we are hoping that by the end of the week we will be celebrating 2013 as a family at home.

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