Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Friday, May 24, 2013

For the moms new to the world of Trisomy 21...Believe me, I know...

I know there are lots of new moms and dads coming into the community of Down syndrome everyday.

I know how scary it can be.

I know how strange it is to love a little person so much, but also be a bit afraid of them and what is in store.

I know the waiting for results and checkups and tests often.

I know the mixed anticipation of meeting that little one. Wanting them here safe and sound, yet wishing they could stay put where you could always protect them.

I also know the amazing feeling of meeting this little one who is genetically enhanced.

I know the tears of joy in seeing the family resemblance.

I know the sigh of relief as you hold them in your arms.

I know the trials and tribulations as all the medical tests get underway and something more might be needed for them.

I know the thrill of bringing them home as you begin your life as a family.

I know the hurt at hearing words spoken by others that now take on a whole new meaning and cut like a knife.

I know the anxiety of wondering whether they would smile, roll, hear.

I know the enormous sense of pride in milestones met.

I know the overwhelming feeling of schedules and appointments.

I know the love in a sibling's eyes when I glimpse them staring into those almond eyes.

I know love like I had never known it possible. 

I know there will be much more to learn.  

I know that is not unlike any of the children in my life, whether they have 46 or 47 chromosomes.

Most importantly, I know you may not believe this is all possible right now.  But I KNOW, you will get there too. Then you will tell others all that you know.


  1. Sometimes the things we cannot change does change us... Great part about that is having the choice to decide what kinda change we want it to be. :)
    Your a great mom and I am so proud of you!
    Love ya Jen

  2. You've got something here, Jen. I'm sure this is cathartic for you but also for other parents. It also helps parents like myself who do not have a Down syndrome baby, understand more. Keep writing sweetie!


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  4. Beautiful. I know too, and also know how beautiful it is on 'the other side'. Thank you for sharing your story so that other parents may get there too x


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