Since staying at home, I have only had 1 cold sore. In a year and a half. I am still busy, just in a different way. It is so nice to have the option to "let something go" for the day (i.e. cleaning, laundry, etc.) in lieu of spending real time with my kids. My "boss" doesn't mind at all and I rarely feel too guilty about it.
Today feels like one of those days. Two children are on my heart and mind today.
During middle of the night feeding, I read a story about a family with a 2 year old daughter named Sophia. She has been battling leukemia and they made the heartbreaking decision to put her on life support in final efforts to save her life. Sophia also has Down syndrome. The link between the two is not coincidental.
The association of Down's syndrome and leukemia has been documented for over 50 years. Multiple studies have established the incidence of leukemia in Down's syndrome patients to be 10- to 20-fold higher than that in the general population. The age of onset for leukemia in these children is bimodal, peaking first in the newborn period and again at 3-6 years. This increased risk extends into adulthood. From ~ http://www.ncbi.nlm.nih.gov/pubmed/2955886
This is one of the yuck sides of DS. An additional worry in life. O's first round of bloodwork was just fine, but who knows what the future holds? For any of us for that matter.
To follow her family's story, please visit this page ~ https://www.facebook.com/BabySophiaJoy
The other kiddo is one that no longer walks in this life with us. Eli was a classmate of my daughter's. He was diagnosed with neuroblastoma at 3 1/2 and fought his battle with cancer a until he went to begin his life with Jesus last year. He was 7 years old. A first grader. Yesterday would have been his 9th birthday. His family's journey is also one that inspires me daily. It puts so much into perspective. Although they journeyed through some of the most awful things with Eli, their faith and love in Him saw them through. Eli had a clear purpose here on earth and so many were impacted by his all too short life here.
Kate talks about Eli and his smile and laughter. It was a hard time last year when he wasn't able to return to school and have to talk about things with your child that you would never hope to. But the faith children have is admirable. After he passed, I knew those at school and we at home had done our job. Kate's response "Now he gets to live with Jesus!" Yes, bug, he does. Forever.
Below I have linked his Eli's Army pages and the video from his Celebration of Life.
http://www.elihorn.com/blog/ or https://www.facebook.com/elisarmy
Celebration of Life Video ~Eli
Why include these today?
No matter how long my days might seem, there is someone that wishes the day would never end as it might be their final moments with someone they love.
We never will know what path is laid out before us. I must trust and have faith that all will be as it was intended to be. The highs will be high and the lows may be low; but they will be nonetheless.