Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Sunday, January 6, 2013


I forgot what it is like to have a newborn in the house. They sure can be night owls!

I also did not consider how often his pulse ox monitor would erupt in the middle of the night.

Sleep is so not overrated.

We are managing a few hours each night, though. And I even got in a shower today!

It's the little things in life to celebrate!

Mr. Owen had a follow up check yesterday for his billirubin (jaundice). Thankfully his number was down, so that means we do not need a billi blanket or light treatment! Woo-hoo!

The car ride was interesting and I was grateful Brian could come with to help. I am also incredibly grateful for friends who are going to help transport kids this week so I do not have to tackle the oxygen tank exchange several times a day for school.

Settling in to the new normal!

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