Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Friday, January 4, 2013

We are HOME! new pics :)

After a busy morning yesterday following up with the doctors and specialists, we were discharged and home by lunchtime!  AMEN!

What an amazing feeling to have all our little ones under the same roof and have the stress of missing someone while we were either home or at the hospital gone.  Although it didn't compare to the 30 day stay in the NICU with Kate, it was a loooonnnnggg week for our family.

Now the chaos can set in for real :)

The kids are excited to have mom and dad back and, with the return to school yesterday, settle back into a routine of sorts.  All the kids were asleep by 9 last night and it was wonderfully peaceful to know they were all snug in their beds while B and I sat up chatting and relaxing in front of the TV.  It was those moments I had been craving!

Now begins the next steps in our journey.

We are thrilled to be home, but the oxygen tank situation is a bit of a hassle.  We are going to do some reorganizing today so that he can be in his crib tonight and I might possibly in my own bed (although it will be a mere hour at a time, probably.). 

I know it will all get worked out, hopefully sooner than later.

SO happy to just be HOME!

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