Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Monday, January 14, 2013


It was a amazing appointment for Owen today with the pulmonologist. 

He spent nearly an hour with us talking, discussing and observing Owen on and off the oxygen. We have rarely had a doc spend that amount of time with us and we really appreciated it as we felt this was a big step for O.  It was clear partly into the appointment, though, that he felt Owen was doing well and would not need the oxygen any longer.


So we now have a little guy free of all cords and tubing!!

This is a tremendous blessing as it makes traveling with the little people so much easier.  Now a trip to drop off or pick up the kids from school does not appear to be a mini-adventure or so daunting a task. 

Also, it means that we can actually carry our son throughout the house without 50 feet of tubing trailing behind.  Phew.

Next steps for Owen include a recheck of his hearing and an evaluation by the AEA to see where we might need additional support.

We are so grateful to all who have joined us in this journey and have kept our family in your thoughts and prayers.  There have been moments of worry and fear of what the future may hold, but I truly believe that we have dodged so many of the major issues that could have impacted Owen. 

We realize that this is only the beginning of our journey in raising a child with potential special needs, but it has really been a blessed beginning as well. 

Hug you kids tonight--they really are such a miracle in our lives! 

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