Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Monday, March 25, 2013

Yay! Or Yeah! (either way!!)

Today is a good day and I have so much to be thankful for in my truly blessed life.

With Owen, I am grateful that he CAN hear! He had the repeat ABR test this afternoon to check his hearing again. The last time it was determined he had mild to moderate loss in both ears. Today things looked better, especially in his right ear. The audiologist said that he is just outside the normal range and closer than he was the last time. She explained that his hearing sounds probably like he is under water; muffled and not very clear. She will be discussing O's results with the ENT doc and getting back to us tomorrow with a plan. Her opinion: it is likely due to fluid in his ears and possibly due to the small ear canals and structures (more common on kids with DS). She thinks it will get better as he gets older and the fluid drains. Her recommendation was that we do temporary hearing aids on, at least, the left side to reduce the effects not hearing may have on his speech development. It is great to have the beginnings of a plan of action and that we are able to help him with what he needs! Stay tuned for super cute pics of our little guy rocking some hearing aids sooner than later!

With the older kids...we cannot wait for spring! Spring break last week was a bust. It snowed and was cold and/or windy nearly everyday. What a bummer! Thankful that things are looking up weather wise and that we can get to the parks and out for walks soon (without being bundled to high heaven!). I am so glad that they had great attitudes for a majority of the week and were content with our stay-cation!

I am incredible lucky to also have a hubby who keeps me grounded and sane. We have done a lot of working on house plans this weekend and are pleased with what we've got. I am so glad that he has a construction-minded brain; it will really help the process along and ensure we end up with the amazing home we would like. Hoping to have a general timeframe by the end of the month--can't wait

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