Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Tuesday, March 12, 2013

Out of the darkness

Another day of some snow here. And wind.  Again.

It was pretty, though, and didn't require shoveling or traveling out in it, so not too bad, I suppose.  Plus, the high for Friday is near 60.  We'll have a glorious, muddy mess, but at least we can hopefully go for a walk or something outside.

Overall things are going well here. Kids are happy and healthy. Conferences were awesome for the older ones.  We meet with the builder this week, so the ball will be rolling on that soon, too!  I cannot wait.  Each day, it seems our house gets a bit smaller.  It will be nice to have more space inside and out.

Several people have asked how far we are moving.  It is only about 20 minutes away and the kids will not be switching schools, so they are thrilled about that.  We will be near a big park with fishing and boating and trails and such, so that will be awesome for the kids.  Where our lots are is an established subdivision with a handful of lots left, so that will be nice, too. I really can hardly wait!

I am emerging from my funk, too.  The return to crazy chaos has helped a bit. As well as the counsel of other DS moms.  Several of us that have kids around the same age have had various run-ins lately and it really is starting to drag us down a bit.  It is comforting (and a bit creepy) how similar our paths in this journey have become.  In a way, I feel like it is us against the world to advocate for our kids. But, a little at a time, we will make a difference and chip away at all the stigma and conceptions around Down syndrome.

This weekend we will be having Owen baptized.  I am so excited for that day, although I am a touch nervous that I will be breaking down during the service.  It is such an important day, and it seems to have taken on a much deeper meaning for me with Owen, and I know the emotions will be running high.  Our pastor typically shares a verse for the child.  Colton's still stays with me as it was from Isaiah and spoke about out of the darkness came a great light.  Pastor Mike had no idea (or maybe he did...) how close to home that hit.  It was a huge decision to quit my job and stay home and I knew it was the right one immediately.  I truly felt I had the light shown on me for my life's true purpose.  Then he read that verse for my son. 


Well, I think 50% of my kids are sleeping (25% on me!) so I am going to go check on them.  Hug your kids and loved ones extra tight tonight. I feel like bad things remind me to do that, but I need to remember that being grateful and happy should remind me to do it too.  Because, hopefully, those are the days that prevail.

The people that walked in darkness have seen a great light: they that dwell in the land of the shadow of death, upon them hath the light shined.
Isaiah 9:2


  1. That was exactly what I needed to read today. Thank you. <3

  2. Kayla's baby dedication is this weekend too! I sometimes feel like it is us against the world too..but if that's how it has to be, we sure do have an awesome group to fight with :)!


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