Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Tuesday, November 20, 2012


We have been keeping a gratitude journal here at home and it has been so fun to see what the kids write about.  They take turns each day and have such different ideas of what to be thankful for. I love it!

Each day I continue to think about how grateful I am that our little one is staying put and growing big and strong so that we can bring the little one home right away.  I have been nesting like crazy and now that my sister and niece have moved out, I am getting the basement all ready for the fun coming our way!

We are also in the process of telling more people in our lives what is going on with baby Jacob and what we have in store.  It is such a nice feeling to hear the kind words from those around us.  I feel like we have so much support and cannot wait for baby to feel the love of those around us! 

When we first received the diagnosis (almost 3 months ago!), I wanted to shout about it from the rooftops - I was not afraid of it and I could not wait for everyone to be as excited as we were about our little one.

Then, I heard a few interesting reactions.  Then I read online.  Then I read more online. Then I started to freak out and really started to think about how others might react.  Maybe we weren't having the reaction that we "should."  Maybe we weren't being realistic.  Maybe we should keep this to ourselves.

Now, rather than shouting it from the rooftops, I am letting it out as if I have a large balloon that I release a bit at a time.

After much more reflecting, we have such a tremendous sense of peace.  There have been so many signs along the way and it continues to amaze me when I feel called to share the news with someone new to our story.  Each time there is a connection or unconditional support that comes from the conversation.  And even if it isn't clear to me now, I believe many of these conversations are seeds being planted for the future.  

I am so happy to share that after telling someone this week, they mentioned that they never would have guessed that anything out of the ordinary was going on.  That encouraged me so much.  I do not want anything to take away from this incredible gift of life and I hope that all of this love and support permeates every part of being and the little one's. Not to pat myself on the back, but I am more impressed with myself lately.  I am already learning so much from this baby as I am taking things much more in stride and focusing on the big picture much more.  Life really is short and what you make of it.  Cliches as they are, sometime they are more true than we know.

This week I am excited to share with more family what is going on.  I am sure there will be varying degrees of belief and understanding, but I know that there will also be love and acceptance.  We are sad to not be traveling to spend time with family and friends this week (I can barely get to the mall comfortably in the car!), but I also see this as a fantastic opportunity to be together as a family. 

Who knows when everything will turn to chaos again here?!?! 

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