Our journey through a prenatal Trisomy 21 (Down syndrome) diagnosis and beyond

I wish it were possible to recognize at the beginning of our life’s story what an incredible journey we are truly on. If so, I would have sat down years ago and begun documenting all the ordinary and extraordinary events in this amazing life I have been blessed with. Sometimes, though, it may take just one more thing to open your eyes into the beauty of the life you have led and causes you to pause and truly count the blessings that are now so many they will never be enumerated.

If you are just joining us, please go back to September 2012 to get caught up.

Friday, September 28, 2012

After the diagnosis

(Author's note: This is where the posts begin in "real time"-- I finally have a few moments to reflect!)
Time has continued to fly by since the official phone call from the genetic counselor.  Beyond all the regular chaos of having 3 children, we have been working to create a plan for baby's arrival.

Shortly after meeting with the GC, we both had a revelation that delivering our little one at the hospital we had the others would mean an association with the pediatric specialists in its system.  It is no surprise to anyone who has known us for awhile that we were less than thrilled with the level of care that Andy received after his EoE diagnosis years ago.  We did not agree with the way our pediatric GI "managed" his care (hence many trips to Cincinnati) and decided that we did not want our little one to be in his care either. 

We are very lucky to have 2 hospitals in the area that have very good NICUs, so we began the process of switching OBs and getting paperwork ready to deliver at another hospital.

In the meantime, I had yet another pregnancy first--failing the 1 hour glucose test.  I am not sure why I was surprised. Everything seems to be different this time around! So next week I will be doing my 3 hour glucose test--Yay! 

Also next up, I will be meeting with my potential new OB next week.  This is where the story continues to be blessed, in my opinion. I asked around on FB who had an OB in the health system I needed that they loved.  I got so many emails about 2 doctors in particular and was just so surprised that there were OB/GYNs out there that were so caring and compassionate.  I never really cared for my doc's bedside manner, but he had helped keep Andy and Colton cooking to full-term, so I just dealt with it.  I knew I was meant to switch for this extra special pregnancy and get real care.

It takes awhile to transfer records, apparently.  I am sure mine took up a small truck too :) When they finally were received I spoke to the nurse 3 times in a 20 minute timeframe as she gathered information and realized I would not be a "boring" pregnancy case.  We spoke on a Friday.  After talking with the doctor, she scheduled me for Monday. 

I am so excited to meet with them and discuss what the rest of my pregnancy will look like. (never thought I'd say that about an OB/GYN!)

Blessings in disguise, yet again!  Had we not gone through the journey with Andy, we would not have looked for alternative care this time around.  Hopefully this will be the right fit for our family!

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